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Leukemia, Lymphoma, Myeloma, MDS, MPN
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Venetoclax and obinutuzumab funded in England by NICE, acalabrutinib licensed- the end of FCR chemotherapy for CLL? Adrian Warnock
10Nov2020

Venetoclax and obinutuzumab funded in England by NICE, acalabrutinib licensed- the end of FCR chemotherapy for CLL?

Today NICE announced that they have agreed to fund Venetocolax plus obinutuzamab for all first line patients with CLL who want to take it in England. …
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Covid vaccine news – what it means for us Adrian Warnock
10Nov2020

Covid vaccine news – what it means for us

Yesterday the world was given great news. This was perhaps the most positive pieces of news since the pandemic began. Understandably government figure…
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What can I do to live longer with blood cancer? Adrian Warnock
9Nov2020

What can I do to live longer with blood cancer?

What can we do to improve our chances of living for many years after a blood cancer diagnosis? Covers accepting treatment, healthy living, and mental health.
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How long will I live with blood cancer? Adrian Warnock
7Nov2020

How long will I live with blood cancer?

How long will I live with blood cancer? What is the survival rate? How can we handle such frightening questions? A hope filled approach.
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UK government advises all blood cancer patients to stop going out to work or shops Adrian Warnock
4Nov2020

UK government advises all blood cancer patients to stop going out to work or shops

I got an email from the UK government advising a return to a limited form of shielding today. In particular there is strong advice to avoid visiting a…
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FCR Diary – Cycle 4 to 6 and my reflections Adrian Warnock
27Oct2020

FCR Diary – Cycle 4 to 6 and my reflections

  This post concludes my FCR chemotherapy treatment diary from two years ago. It is a warts and all story, and if you decide to read it please re…
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FCR Diary – Home at last and Cycle Three Adrian Warnock
26Oct2020

FCR Diary – Home at last and Cycle Three

This is a continuation of my FCR diary from two years ago. If you haven't read the previous articles here they are: The Day Leukaemia Changed My Lif…
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FCR diary – Cycle 2 as an Inpatient Adrian Warnock
24Oct2020

FCR diary – Cycle 2 as an Inpatient

Today we continue publishing my two year old treatment diary. Please remember these posts come with a health warning. My experience will not be your e…
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FCR Treatment Diary – an unexpected hospital admission Adrian Warnock
22Oct2020

FCR Treatment Diary – an unexpected hospital admission

This is a continuation of a warts and all diary of my FCR treatment which happened two years ago and is now being published on the open web for the fi…
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More than just a website – Join us! Start Here!
17Oct2020

More than just a website – Join us!

Blood Cancer Uncensored is a community effort. We are a group of people affected by blood cancer who are committed to supporting and informing others …
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Perspective in the Midst of Troubles Consider The Lilies12:27
16Oct2020

Perspective in the Midst of Troubles

I have never seen really, really extreme weather where I live. Yeah, I was around for the Blizzard of 1977 in Western New York, but I was a kid and it…
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FCR Treatment Diary – Gratefulness during Cycle One Adrian Warnock
15Oct2020

FCR Treatment Diary – Gratefulness during Cycle One

Two years ago this week I started chemotherapy as part of the FLAIR trial. Here I share my diary from that time. Please turn away if you are the sort …
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FCR Chemotherapy diary – Treatment Looms Adrian Warnock
13Oct2020

FCR Chemotherapy diary – Treatment Looms

A friendly warning message As I explained yesterday, I am two years out this week from starting FCR chemotherapy. Spoiler alert: the treatment worked …
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Two years ago I started FCR Chemotherapy Adrian Warnock
12Oct2020

Two years ago I started FCR Chemotherapy

This week marks the two year anniversary of me starting FCR chemotherapy. The FCR stands for Fludarabine, Cyclophosphamide and Rituximab. This is stil…
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Diagnosing and Understanding Cancer related fatigue Adrian Warnock
3Oct2020

Diagnosing and Understanding Cancer related fatigue

A while back I found a great article on fatigue aimed at doctors but understandable to I would expect most of us who read this site. It’s all about ca…
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Nutrition Discussion – What drives our choices? Planet Health
2Oct2020

Nutrition Discussion – What drives our choices?

How do I decide what to eat? Someone offers it and I want to be agreeable = SOCIAL I like the taste, the flavour/aroma just before it enters my mouth.…
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Healing is a Journey Consider The Lilies12:27
30Sep2020

Healing is a Journey

I cut my finger a few days ago. I was riding my bike....no, I was doing archery....no, I was skydiving...no, I was fixing something in the house. All …
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OXFORD Vaccine Trial Resumes Adrian Warnock
12Sep2020

OXFORD Vaccine Trial Resumes

Earlier in the week it was announced that following an unusual illness arising in one of 30,000 people who have so far taken the Oxford vaccine trial …
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Inflammation – Where’s the fire? Planet Health
12Sep2020

Inflammation – Where’s the fire?

Inflammation is like a fire in the body that triggers an alarm to alert me to a crisisThe alarm gets different names… such as joint pain, indigestion …
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Why “remission” can feel like a crushing blow Adrian Warnock
8Sep2020

Why “remission” can feel like a crushing blow

I found finishing chemo and being told I was in remission the most difficult time emotionally. It was worse than the initial diagnosis time. Worse than actually going through chemo. Worse than being in hospital with life threatening infections.
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Health Before Fitness Planet Health
6Sep2020

Health Before Fitness

It is not unusual for people to take up fitness activities in the hope of becoming healthy. Fitness is really an expression of health suggesting that …
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One-Pointed Attention – What is that? Planet Health
1Sep2020

One-Pointed Attention – What is that?

Humans have wonderful minds and mine is always busy. I will often find myself thinking about the past or worrying about the future. And yet I must adm…
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Riding A Bike Consider The Lilies12:27
31Aug2020

Riding A Bike

This is not a picture of me. But perhaps it could be. Recently, my husband bought used bikes for both of us. We are having such a wonderful summer, ev…
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Tumor Lysis Syndrome (TLS) is an Emergency we must ALL be alert to. CLL Pharmacist
25Aug2020

Tumor Lysis Syndrome (TLS) is an Emergency we must ALL be alert to.

Did you know that Tumor Lysis Syndrome can occur spontaneously even for patients not receiving treatment. We all should know the symptoms of TLS as it…
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Intermittent Fasting Planet Health
23Aug2020

Intermittent Fasting

When a new idea is presented, our tendency is to defend what is familiar to us. Nothing could be more sacred that our habitual ways of eating and drin…
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Which Medicines Treat COVID-19? – Dexamethasone? Hydroxychloroquine? Antivirals? Monoclonal Antibodies? Adrian Warnock
19Aug2020

Which Medicines Treat COVID-19? – Dexamethasone? Hydroxychloroquine? Antivirals? Monoclonal Antibodies?

Cut through the controversy and find out which medicines have been proven to work in Covid19 in randomised control trials.
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Scars Consider The Lilies12:27
18Aug2020

Scars

I am not who I was before. I am actually better somehow, but I do have trouble seeing that sometimes... It is interesting how this disease has stolen …
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Breathing Part 3 – Nose Breathing can have a profound health benefit Planet Health
17Aug2020

Breathing Part 3 – Nose Breathing can have a profound health benefit

The conclusion of the Planet Health Breathing can save your life series.
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The future of CLL treatment – time limited combination treatments? Adrian Warnock
16Aug2020

The future of CLL treatment – time limited combination treatments?

What is your goal for treatment? Getting rid of as much CLL as possible and having a long remission? Or containing the CLL and putting it into reverse for a long time?
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Bayer/Monsanto Roundup litigation – a non-lawyer’s view Not Scary Answers
15Aug2020

Bayer/Monsanto Roundup litigation – a non-lawyer’s view

In today's post Scott shares his own personal reflections on this lawsuit. This does not constitute legal advice and anyone involved in this case is a…
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Interview with Non-Hodgkin’s Lymphoma Surivor Sharon Edwards Adrian Warnock
14Aug2020

Interview with Non-Hodgkin’s Lymphoma Surivor Sharon Edwards

Told by doctors she was going to die, Sharon Edwards has survived ten years following a diagnosis of high grade Non-Hodgkin's Lymphoma. Her type of DLBL was aggressive, and needed aggressive treatment. Sharon shares her experiences with us in this interview.
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The importance of routine for health Planet Health
13Aug2020

The importance of routine for health

In this introduction to last weeks regular Zoom call Eric Clark shared a conversation starter on the subject of building a healthy routine. …
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What is Duvelisib? CLL Pharmacist
8Aug2020

What is Duvelisib?

Tom Henry is the CLL Parmacist, and one of our authors. Join him as he introduces us to Duvelisib.
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Catastrophic System Failure-Why the Support Group Concept is so Important Consider The Lilies12:27
8Aug2020

Catastrophic System Failure-Why the Support Group Concept is so Important

This life is so strange. We hopefully live life as healthy individuals at least until age 40 or age 50, but inevitably, these bodies break down. Then,…
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Staying safe from Covid19 as lockdown eases Adrian Warnock
7Aug2020

Staying safe from Covid19 as lockdown eases

"I do not think many of us will be going clubbing just yet" How to stay safe as COVID lockdowns ease.
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Breathing Part Two: What does the science say? Planet Health
6Aug2020

Breathing Part Two: What does the science say?

When we are challenged to learn something new as children, we usually rely on what others say. It may be a parent, a teacher, a book or a TV program. …
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A Big Not Scary Answer Not Scary Answers
4Aug2020

A Big Not Scary Answer

WHAT COMES NEXT Shane Scott (all rights reserved) Death never hurts. Dying usually does. Living, that hurts most of all. That might sound clever or ev…
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And for our next star – Scott Not Scary Answers
4Aug2020

And for our next star – Scott

Yes THAT Scott for those who knew him in another life. The recruitment rate is hotting up. Two new bloggers in as many days! This one will be bit of a…
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Introducing Tom Henry the CLL Pharmacist CLL Pharmacist
3Aug2020

Introducing Tom Henry the CLL Pharmacist

It is our great honour to welcome the seventh member of the writing team here at Blood Cancer Uncensored: Tom Henry who is a specialist pharmacist, a …
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Can we ‘think away’ pain? Mike Gibson
2Aug2020

Can we ‘think away’ pain?

This post was first published in November 2019 Many years ago (decades actually), I watched a child screaming in fear as a Doctor prepared an injectio…
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Breathing Part One: What are we doing wrong? Planet Health
1Aug2020

Breathing Part One: What are we doing wrong?

Welcome to a new Planet health series exploring how learning to breathe in a different way might improve your energy levels. Join Eric as he introduce…
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Custom blood cancer search Adrian Warnock
1Aug2020

Custom blood cancer search

Use this search engine to find quality information form our hand-picked blood cancer websites. This customised google search tool will help you find a…
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Handling difficult emotions – the role of friends and therapy Adrian Warnock
31Jul2020

Handling difficult emotions – the role of friends and therapy

A very difficult childhood. Bereaved of her father at the age of nine. Taken into care. A teenage rebel. Bereaved again of her beloved sister when a y…
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Clonal evolution for dummies Blood Cancer for Dummies
31Jul2020

Clonal evolution for dummies

In this Blood Cancer for Dummies article the focus is on clonal evolution which is the process by which cancer cells can acquire resistance to treatme…
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What would I do without you? Mike Gibson
30Jul2020

What would I do without you?

This post was originally published in November 2019 Thank you for all the kind thoughts and comments since I’ve been doing these posts on my CLL. I ge…
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So what’s wrong with you? Mike Gibson
24Jul2020

So what’s wrong with you?

This post was originally published in early October 2019 I've been quiet for a while recently (I told you - this replaces my sessions with my beloved …
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The Fatal Sip Consider The Lilies12:27
23Jul2020

The Fatal Sip

My friend texted me in a panic one morning. She was asking for prayer as she had drunk some rancid cream. She followed that text up with another that …
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Where would we be without family and friends? Mike Gibson
21Jul2020

Where would we be without family and friends?

This article was originally published in late September 2019 As I sit here in a little slice of paradise thanks to the largesse of a much loved friend…
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Taking control of our health issues Mike Gibson
21Jul2020

Taking control of our health issues

This post was originally written in September 2019 I know a number of people in my network are fighting various forms of cancer and (from our chats) i…
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Introducing Mike Gibson Mike Gibson
21Jul2020

Introducing Mike Gibson

Introducing our 6th blog author here at Blood Cancer Uncensored. Maybe you could be next?
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Planet Health in a Nutshell Planet Health
19Jul2020

Planet Health in a Nutshell

https://youtu.be/7g7a6SUOYBA Self-Health and Medicine - not a Competition…
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No Second wave? Long-term COVID19 herd immunity already? Science suggests variable and long-lasting coronavirus protection. Adrian Warnock
17Jul2020

No Second wave? Long-term COVID19 herd immunity already? Science suggests variable and long-lasting coronavirus protection.

Previously we discussed the leaked news that the Oxford vaccine is producing both an antibody response and a T-cell response.  This we noted was …
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Will the Oxford vaccine work? Initial results in context – the beginning of the end for COVID-19? Adrian Warnock
16Jul2020

Will the Oxford vaccine work? Initial results in context – the beginning of the end for COVID-19?

"Oxford vaccine causes double defence against COVID-19" was the overnight breaking news in the Telegraph. I cannot confirm or deny this leak. But this article aims to put it in context.
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Is Health a Choice? Planet Health
12Jul2020

Is Health a Choice?

Depending upon the moment I ask you this question, you may answer ‘yes’ or ‘no’. Modern life seems to be a competition for our time and attention. Eve…
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The Itch from Within-Hyper IgE Syndrome or something else? Consider The Lilies12:27
11Jul2020

The Itch from Within-Hyper IgE Syndrome or something else?

This is a very serious post. I do not have any jokes about pets or condiments this time. As I felt sickness overcome me three times in the last 2 week…
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Dealing with the threefold tyranny of a damaged immune system (Infections, Inflammation, Fatigue) Adrian Warnock
11Jul2020

Dealing with the threefold tyranny of a damaged immune system (Infections, Inflammation, Fatigue)

What can we do when cancer and chemo have led to a trail of destruction in our immune systems?
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Welcome to Planet Health Planet Health
10Jul2020

Welcome to Planet Health

Diverse experiences have shaped me, including living in Switzerland for a year and then Congo-DRC for 6 years. I was involved in community development…
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The View from Above Consider The Lilies12:27
3Jul2020

The View from Above

We enjoyed some well-deserved time off this week. It is a beautiful summer here in Western New York, and the weather has been beyond excellent. Some s…
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Top 30 Leukemia blogs list includes Blood Cancer Uncensored Adrian Warnock
29Jun2020

Top 30 Leukemia blogs list includes Blood Cancer Uncensored

This blog was only launched in May and so we are honoured to have been included in the top 30 Leukemia blogs selected by Feedspot. There are lots of o…
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Revolutionary Plug and Play Vaccine Platform Adrian Warnock
27Jun2020

Revolutionary Plug and Play Vaccine Platform

There is a phenomenal amount of work going on right now to find a vaccine for COVID-19. No fewer than 200 vaccine candidates are being looked at. Sixt…
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Monoclonal antibodies for dummies Blood Cancer for Dummies
26Jun2020

Monoclonal antibodies for dummies

We recently did an antibodies for dummies post. You might well ask why "monoclonal" antibodies gets its own dummy feature write up. That would be like…
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How a vaccine works Adrian Warnock
24Jun2020

How a vaccine works

This is the next post in our Corona Hope series. If you have missed the previous articles you may want read them before continuing. The goal here is t…
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Ashwagandha Use in the Fatigue Fog? Consider The Lilies12:27
24Jun2020

Ashwagandha Use in the Fatigue Fog?

I am not a science kinda gal. I like many things about science, but not necessarily digging deep into the labyrinth of technical jargon that goes alon…
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Antibodies (immunoglobulins) for dummies Blood Cancer for Dummies
23Jun2020

Antibodies (immunoglobulins) for dummies

Wait, what do antibodies have to do with blood cancer? A lot as it turns out. Many blood cancers are of a type of lymphocyte called a b-cell. The prim…
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Facing the Son Consider The Lilies12:27
22Jun2020

Facing the Son

I have a serious problem lately! I keep buying salad dressings! I do like to eat salad, but this is a lot of dressing. In the last week, I have bought…
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Ibrutinib and BTK inhibitors for dummies Blood Cancer for Dummies
19Jun2020

Ibrutinib and BTK inhibitors for dummies

Ibrutinib is a relatively new and revolutionary drug that has changed the landscape for treating CLL . For many people, it might be the only leukemia …
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A hospital admission in the COVID19 era Adrian Warnock
17Jun2020

A hospital admission in the COVID19 era

Just over three weeks ago I woke in the night with symptoms of severe asthma along with itchy skin and nose. For some reason health crises often seem …
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Mutated and unmutated CLL for dummies Blood Cancer for Dummies
14Jun2020

Mutated and unmutated CLL for dummies

When told I had chronic lymphocytic leukemia (CLL) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I ju…
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Acute Myeloid Leukemia (AML) a new approach Adrian Warnock
13Jun2020

Acute Myeloid Leukemia (AML) a new approach

EHA25Virtual: A Paradigm Shift for the Treatment of Newly Diagnosed Older Acute Myeloid Leukemia Patients THE HAGUE, Netherlands, June 13, 2020&n…
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FISH testing and chromosomes for dummies Blood Cancer for Dummies
12Jun2020

FISH testing and chromosomes for dummies

I am betting most of us had a blood cancer tabula rasa at diagnosis, that is, our knowledge of blood cancer was a blank slate. When told I had CLL, al…
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Holding on Too Tight Consider The Lilies12:27
11Jun2020

Holding on Too Tight

We all have them. Memories of traumatic events we wish would just "go away". In my field of work, I hear the phrase Post Traumatic Stress Disorder way…
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“I’m new here” – where to start, how to donate or get help, use our search engine Start Here!

“I’m new here” – where to start, how to donate or get help, use our search engine

What is blood cancer? Why Uncensored? Can my blood save a life? Where can I find some hope?
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Cell biology and blood cancer for dummies Blood Cancer for Dummies
9Jun2020

Cell biology and blood cancer for dummies

In the interest of full disclosure, I have no science background. To the contrary, science was my worst subject in high school. So when I was diagnose…
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Sex and Blood Cancer Study Medical Research and Surveys
9Jun2020

Sex and Blood Cancer Study

There are some subjects even I do not like to share about publicly. Sexuality and blood cancer is one of them. And since there has been almost no rese…
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COVID-19 and Blood Cancer an Expert’s View – with Prof Peter Hillmen Adrian Warnock
9Jun2020

COVID-19 and Blood Cancer an Expert’s View – with Prof Peter Hillmen

Watch this video if you need a bit of hope from one of the World's Leading Experts in CLL. Just how risky is catching COVID19 for blood cancer patient…
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Video: Prof Peter Hillmen Global Expert explains CLL Adrian Warnock
9Jun2020

Video: Prof Peter Hillmen Global Expert explains CLL

Watch this friendly and easy to understand interview with one of the top specialist doctors in the World on this form of blood cancer. Prof Hillmen ex…
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Covid for dummies – part deux Blood Cancer for Dummies
9Jun2020

Covid for dummies – part deux

Virus for dummies part 1 was introductory in nature and talked a lot about viruses in general, less about covid-19 (covid) specifically . For those wh…
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Matching Socks Consider The Lilies12:27
9Jun2020

Matching Socks

I have many flaws. Perhaps some would call my problem a little touch of OCD. I spend a lot of time on something, trying to get it "just right", and th…
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Fatigue – the crushing of energy Adrian Warnock
8Jun2020

Fatigue – the crushing of energy

Fatigue. It’s a normal sounding word. And when we use it to describe the profound limitations sometimes caused by blood cancer people say things like …
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The Blood Cancer Uncensored & Adrian Warnock Podcast Adrian Warnock
8Jun2020

The Blood Cancer Uncensored & Adrian Warnock Podcast

Host Adrian Warnock has a relaxed interview style and you will feel like you are in a string of chats over coffee with patients, doctors, pastors, and…
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Easy to understand articles, videos and a podcast cover all types of lymphoma, leukemia, myeloma, Myeloproliferative Neoplasms (MPNs) and myelodysplasia (MDS). Learn how to live with a diagnosis, handle emotions, improve your own health, and understand the latest medical research.

 

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